Thursday, February 3, 2011

Update

I'm going to start off with some pretty awesome news! Jayden gained 500 grams a little over 1 lb in 2 weeks! That's the most weight he has gained since right after transplant with all the steroids. He now weighs 20 lbs! I cant believe he is here again! Now we just have to get him to the 3rd percentile before they remove the g tube. Jayden's EBV has stil not come back but (now here comes the biggest news) Jayden's Alkaline Phosphatase has come DOWN! So for now there will be no hematology/oncology appointment. But we aren't out of the woods yet. He is still on all the same meds as before no changes there. So even though my little peanut is sick and it was as cold as Antartica lol it was a pretty good morning.

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3 comments:

  1. That's great news Krystal! Prayers that he continues to progress positively!

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  2. Wonderful news!!!! I hope Jayden feels better very soon!! Does he have a cold?

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  3. Rihanna: Thanks!

    Megan: Thanks! I am so hapy when they told us about the Alk Phos levels I didnt know what to expect I was so angry and scared etc etc I didnt know what to pray for I forgot that praying for it to just get better was a possibility I just kept praying that no matter what it was that Jayden could just be ok and make it past whatever it was. God has blessed us more than I knew possible.

    Yes he has a silly cold and last night was just not good for him idk what it was but he was crying for ever and then he couldnt sleep or get comfortable and was just fussy and grumpy I finally gave him tylenol and after a while he just seemed to feel a little better and finally went to sleep.

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