Day 10

Mommy loves to watch me play!

Today we had yet another appointment to go to. I was pretty disappointed to say the least. Jayden gained nothing not one gram. His diarrhea continues. They told us Jayden's CMV (Cytomegalovirus) is positive. this is common in almost everyone but pretty dangerous in transplant patients. Jayden has been on antibiotics for this and other viruses since after transplant but his numbers are still pretty high. We aren't sure what is causing it so for now we retest and monitor. Next, they told us that Jaydens Small Bowel is pretty weak and isn't absorbing any nutrients. His large Bowel is showing some form of allergies (do not know to what yet.) His Alkaline Phosphatase (an enzyme made mostly in the liver) His numbers were extremely elevated which worries the Dr. They say he is also vitamin D deficient which could be causing the Alk Phos to be elevated but he is on a multi vitamin and an extra Vitamin D supplement so again we are going to recheck those numbers and see where we are at. If his vitamin D level improves along with the Alk Phos one mystery is solved, if not then we will tackle that hurdle when we get there. For now they are stopping his Cellcept one of his anti-rejection medications because that may be causing the diarrhea if that stops the diarrhea then another mystery solved if not then we will change his milk yet again to Elecare an amino-acid-based, hypoallergenic formula that is specifically designed for infants and children with special feeding issues. So basically there is a basket of unknowns that has been dropped off at our doorstep and we have to figure out what the heck everything is and if its broken or needs some type of care then we tackle the issues one by one so we know what the heck is going on. I'm feeling pretty overwhelmed with all of this in one visit, last time we went in none of this was brought up. I guess the results we got today some were from last week and some were from when he was hospitalized. His Dr was out of town and today was his first time seeing Jayden since before thanksgiving. So somebody dropped the ball on this and I wanted to take a moment to figure out who so I can kick some butt, but I need to focus on Jayden and the things that matter right now. I just hope that this delay in information doesn't harm Jayden's health or Liver.

Daddy took some pics of us while we played! Thank You Daddy! 

 Ok so todays post was really long and has nothing to do with todays picture. Today we let Jayden play with his Discovery Kids Play Tent and Tunnel, we had a blast playing inside our "clubhouse" and "hiding" from Daddy. Jayden has this attachment to me that I must admit at times I'm frustrated because I cant even pee without him wanting me to hold him or seeing his little fingers under the door because he wants inside lol but on the otherside of that I am so grateful that I have a son who loves me and I can spend every moment and every day with; because one day he will grow up and have kids of his own and then maybe he will form that same bond with his children. Jayden's Love keeps Jamie and I going each and every day